Living with HIV

Talking to your doctor about HIV

Attending your medical appointments is one of the most important things you can do to ensure your HIV is optimally managed. Make sure you are ready for your appointments with this planning checklist.

  • A list of any medications you currently take, including vitamins and herbal supplements
  • A description of any medication side effects that you may be experiencing
  • Information about any major changes in your life
  • A list of any questions you may want to ask

Unity Tool

Effective communication with doctors can significantly enhance treatment outcomes.10

ViiV Healthcare, alongside an expert panel of PLHIV and doctors has created a simple 10-minute questionnaire that generates a personalised guide for you to take to your next appointment.

This appointment guide is tailored for you, and aims to build a picture of your current quality of life related to your HIV, whilst highlighting any concerns that you may have.

 

All responses to the questionnaire are anonymous and it is completely optional whether you choose to share the guide with your doctor, but many people have found it useful.

 

Why not try it out for yourself?

1 Take a look at how the 1,111 participants from the Positive Perspectives survey feel about raising issues with their doctor and what issues they don’t raise1

Did PLHIV raise issues with their doctor?

71%

of participants are very comfortable with raising issues of concern to their doctor

Worried about long-term effects of treatment?

26%

of participants are worried and haven’t raised this concern with their doctor.

  • 2 See below how this 71% (789) of PLHIV who are very comfortable in raising issues with their doctor differs by region, gender, age and sexual orientation:
  • 2 See below how this 26% (n=206) of PLHIV who worry about the long-term effects of HIV treatment but haven’t raised the concern with their doctor differs by region, gender, age and sexual orientation:

Region

Age

Gender

Sexual Orientation +

Applied filters

Region

Age

Gender

Sexual Orientation

0%

0%

0%

0%

The Positive Perspectives survey report

You can download the Positive Perspectives survey report here. This report is focused on the attitudes and perspectives of PLHIV around diagnosis, disclosure, treatment and communicating with your doctor. New partner/significant other perspectives coming in 2018!

DOWNLOAD REPORT

(PDF 8MB)

Perceptions from participants that took part in the Positive Perspectives survey

Your stories relevant to talking to your doctor

Why it's important to talk to your doctor?

Listen to Juno’s experiences, and hear why she trusts her doctor

Juno discusses how the perception of HIV has changed for doctors and how they were impacted by providing an individual with the diagnosis at the beginning of the epidemic.

VIEW JUNO'S FULL STORY

References:

  1. Young B, et al. Patient Experience & Views on Antiretroviral Treatment − Findings from the Positive Perspectives Survey. Presented at the Infectious Disease Week (ID Week), 4−8 October 2017, San Diego, USA. Abstract number #1393.
  2. 10 Thomson, C. et al (2015). Identifying Priorities for HIV Consultations among Healthcare Providers (HCPs) across Europe: Results of a Pan-European Survey. In: 15th European AIDS Conference (EACS), 21 24 October 2015, Barcelona, Spain, PE8/69.